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Working Group 5

Health-Related Quality of Life (HRQoL) and Patient-Reported Outcomes (PROs)

Aim

  • Create and validate PRO questionnaires specific to VLDs; 
  • assess quality of life impacts.

Deliverables

  • PRO questionnaires (translated into 6+ languages), 
  • Publications.

COST

COST (European Cooperation in Science and Technology) is a funding agency for research and innovation networks. Our Actions help connect research initiatives across Europe and enable scientists to grow their ideas by sharing them with their peers. This boosts their research, career and innovation.

COST

COST Actions - CA23146

Vascular liver diseases are a heterogeneous group of rare disorders characterized by an impaired vascular flow in the splanchnic and/or intrahepatic vasculature. They mainly include recent portal vein thrombosis, portal cavernoma, porto-sinusoidal vascular disorder, Budd-Chiari syndrome and sinusoidal obstruction syndrome.

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Actions Contact

MoU – 059/24
CSO Approval Date – 17/05/2024
Start date – 30/10/2024
End date – 29/10/2028

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